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Session Overview
Oral Presentation XV: "Very Preterm Infants: Developmental Follow-up and Early Intervention from the Parents' Perspective"
Tuesday, 22/Nov/2022:
4:30pm - 4:45pm

Presenting Author: Michael von Rhein

Location: Auditorium Tissot

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Very Preterm Infants: Developmental Follow-up and Early Intervention from the Parents' Perspective

Corina Müllner1,2, Giancarlo Natalucci2,3, Michael Kleber4, Lukas Hegi4, Cornelia Hagmann2,5, Oskar Jenni1,2, Michael von Rhein1,2

1University Children’s Hospital Zurich, Child Development Center, Zurich, Switzerland; 2University Children’s Hospital Zurich, Children`s Research Center, Zurich, Switzerland; 3University Hospital Zurich, Neonatology, Zurich, Switzerland; 4Cantonal Hospital Winterthur, Neonatology, Winterthur, Switzerland; 5University Children’s Hospital Zurich, Neonatology, Zurich, Switzerland

Background/aim: In Switzerland, 1% of all live births are extremely to very preterm born. Preterm-born children have an increased risk for developmental impairments. To early detect delays and initiate treatment (if necessary) follow-up assessments (FU) are recommended.

The aim of this study was to determine the FU rate and identify hurdles for families to visit FU. In addition, we aimed to evaluate the parental views regarding FU and early interventions.

Methods: 210 children born <32 weeks’ gestation between 01.07.2016-30.06.2017 admitted to a neonatology ward in the Canton of Zurich. Among those, 27 died, and 7 moved abroad. The remaining 176 families were included in this cross-sectional study and contacted for a telephone interview about their views on FU and early interventions. 113 families participated the interview, and 64 completed a more extensive questionnaire.

Results: Among the 176 families, 67% participated in all scheduled FU. The interviews showed that the majority (95%) found the FU visits helpful. Among the 33 families, who did not come for FU but participated the interview, reasons to skip FU were, that families weren’t aware of the FU program or did not receive the invitations (n=13, 39%), or that they didn`t have concerns about their child’s development and refused to come (n=7, 21%).

Conclusion: Parental satisfaction with FU was high among participants. To reach the goal of a FU rate above 80%, rising parents` awareness of the FU program, counseling families about the benefits of these visits, and improvements in the enrollment processes might be helpful.

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