9:00am - 9:15amID: 201
/ PS-22: 1
Topics: Technology; Culture; and SocietyKeywords: health informatics, mobile apps, privacy, trust, qualitative research, human information behavior
"Predictive Ads Are Not Doctors": Mental Health Tracking and Technology Companies
Rutgers, the State University of New Jersey, USA
Although using mobile phone apps to track and monitor mental health is increasingly popular, we know little about how and why people with mental health diagnoses use such technologies, nor do we know of concerns they may express about these apps. Further, automated assessments of mental health status, or digital phenotyping, are also on the rise; how people with mental health conditions feel about such technologies is also an underexplored area of research. This paper presents an exploratory interview study with 12 people that begins to address these gaps. We focus specifically on how participants, who all have been diagnosed mental health conditions, perceive tech companies’ involvement with existing mental health apps and mental health digital phenotyping. We find that participants satisfice in order to interact with existing mood tracking apps, and that they are wary of digital phenotyping for mental health diagnostics. Participants raise concerns related to profit motives, distrust, and fatalism in both cases, and they recommend regulations that may be put in place to keep tech companies in check. Though participants describe regulatory policies that may mitigate their concerns, we question whether regulations can truly foster sustainable interactions with mental health apps operated by technology companies.
9:15am - 9:30amID: 273
/ PS-22: 2
Topics: Privacy and EthicsKeywords: Social Media, Mental Health, Privacy
Privacy Considerations When Predicting Mental Health Using Social Media
University of Illinois, Urbana-Champaign, USA
In recent years the number of individuals struggling with mental illness has increased, and traditional mental health services are now considered insufficient under the current circumstances which has prompted researchers to develop new approaches for mental healthcare. Social media usage is growing, and it is been utilized to help provide additional insight on mental health by using the information shared by individuals, as well as data taken from their social media activity. While this approach may provide a unique and effective perspective for mental health services, it is critical that privacy risks and protections are considered in the process. Social media services collect, process, and stores a substantial amount of information about its users and how that information is shared as well as what type of predictions are made may pose serious privacy concerns. This study aims to understand how privacy is addressed and emphasized during the process of using social media data for mental healthcare by constructing a systematic review on previous scholarly papers related to the topic. Solove’s taxonomy of privacy is used to evaluate these publications privacy considerations and to demonstrate the privacy risks that may arise when social media data is used for mental health.
9:30am - 9:45amID: 331
/ PS-22: 3
Topics: Social Media and Social ComputingKeywords: emotional support online, intergenerational connection, epistolary forms online, YouTube, online advice
“Dear Amy”: Seeking Support on YouTube
Drexel University, Philadelphia, Pennsylvania, USA
Among many video genres, YouTube is a hub for “how-to” videos, including advice on how to work through difficult life circumstances. For this pilot study, we investigated a sample of comments in response to two Ask Me Anything videos recorded by a popular comedian and geared toward adolescents and emerging adults. Ask Me Anything videos respond to viewer questions on social, personal, and professional topics, such as coping with embarrassment, worries about school exams, relationship power dynamics, and general life stress. In our analysis, we identify emerging trends in the language of viewers’ responses and investigate (1) how viewers are responding to the videos, and (2) what such responses could mean for the design of social computing systems and their use for social and emotional support. We find indications of users’ emotional support seeking, evidence of adult audience members’ seeking to answer younger responders’ questions posted in response to the videos, and the use of epistolary forms to express perceived emotional connections with the video host. In future work, we will seek to understand what elements of the videos are invoking such personal connections and explore designs of social computing systems to better support personal connection and intergenerational support online.
9:45am - 10:00amID: 342
/ PS-22: 4
Topics: Technology; Culture; and SocietyKeywords: non-response, being ignored, smartphone-mediated communication, sender’s perspective, non-verbal computer-mediated communication
Response to Non-Response: How People React When Their Smartphone Messages and Calls are Ignored
Simmons University, USA
Smartphone-mediated communication has become the norm for a lot of people over the last two decades. It’s common to see people spend a large part of their days glued to their smartphones, maintaining constant connectivity through sending and receiving messages and calls. However, people, almost daily, experience their closed ones or professional contacts not responding to certain messages and phone calls from them. The objective of this project is to investigate the non-response behavior and the anxiety that people experience when their messages or calls are not responded to, and the resulting adverse effect on communication. Through interviews of 24 smartphone users, we found that the majority of the participants, especially those very active on social media, were highly affected by non-response. By better understanding individual reactions to non-response, the study recommends solutions and a framework for effective communication using smartphones. The study demonstrates how relationships play out in smartphone-based communication, and what we could do to make them better. The study will inform the youth, parents, teachers, employers, and the society as a whole, as we embrace changes brought about by smartphone-mediated communication.